Hi Ladies! I’m wondering if anyone can help me. I a first timer and now 24 weeks pregnant my son. Our doctor is diagnosing my son with ectrodactyly. Most people don’t know what this is because it is so rare,
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Nike Free Run 5.0 V3 2014 Gris,000. It is when there is a missing middle digit or multiple digits in the hands and feet with the rest cleft or fused together.

It looks as if son missing his pointer and middle finger on his right hand and there is a big space in between the middle part of both of his feet,
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trying to keep strong but it’s been really hard. Especially hearing and seeing other Mom’s saying their babies have been born healthy with 10 fingers,
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I am just looking for some type of support or help out there from other Mom’s going through this or have friends family that have it,
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Welcome Jess! You have already gotten lots of support and word of wisdom. I will never forget when Zachary was born,
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Charity Mom to Nicole (11),
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I haven’t been on in a while gave birth to my son on 12/24/08 and he has me running around like a chicken with my head cut off,
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Congratulations on the upcoming birth of your little boy,
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My son was also diagnosed prenatally with 2 birth defects a missing kidney and a VSD (hole in his heart). My husband and I were shocked and scared. But when he was born,
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BTW,
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Nike Roshe Run Tissé Femmes Rouge Noir Nous Fournissons De Haute Qualité,0000. It was a complete surprise when he was born. The doctors didn’t notice any of the missing toes on the sonograms. a parent you want to trade places with your child but you can’t. When he was born they told me there may be a chance he might not be able to walk. Doctors and students took pictures to study his condition. I kissed his toes every night and prayed to God. I still kiss his toes every day. I do not treat him like he has a disability. He was walking at 11 months. He wears shoe inserts to straighten his feet some have told me that as he gets older that his weight may not with stand his feet. Do I believe that? No. You will find that you will be your own doctor and you will know what your child is capable of.

If my son takes his shoes off / socks off (which he often does) yes people stare,
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Mother to Tyler (born 03 04 06) and Joshua (born 10 20 09)

Hi Jess I too am Jess and can relate to how you are feeling. I am 37 weeks pregnant today and was told at our 20 week ultrasound that our little girl has no fingers on her left hand. DH and I have been through a lot of different emotions since we found out and now with only three weeks left to go we are super excited but scared all at the same time. did some research when we first found out and visited a hand specialist to see if it would make us feel any better. The specialist told us about some work being done to take toes and surgically place them on her hand,
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If you ever need someone to talk to who is not too far ahead of where you are,
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I am new on this site but am also looking for support and thoughts on ectrodactyly. My daughter was born 8 5 09 with ectrodactyly affecting both hands but otherwise is healthy. We are awaiting a referral to see a pediatric geneticist I think what is interesting about our case is that my husband was also born with ectrodactyly. Our daughter’s experiences will be completely different than his,
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Hello! My son also has 3 fingers on his right hand! His pinky,
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Im male in my mid twenties . I was born with my left arm a little shorter (by half an inch) and three missing fingers on my left hand. I only have a pinky and thumb on my left hand. I was lucky to have those two fingers cause it makes gripping easy. though I’m a little insecure about my situation,
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The doctor told my mom something very special when was born,
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Currently,
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My beautiful daughter was born with only 7 toes. We did not know about the missing toes until she was born,
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